Wednesday, November 24, 2010

Fragility

Aris Lake Tahoe July 29, 2008

Aris had a seizure today. It was strange & scary. I watched her as she was sitting in her chair eating. If I hadn't chosen to eat at the table with her I would have missed it. I know in my heart there are no coincidences. At first I thought she was choking but soon realized she wasn't. She sat there staring at me but she wasn't looking at me. It's hard to explain this look but my heart knew something wasn't right. Then she started to make a chewing motion with her mouth. I kept calling her name over & over again & she didn't flinch. Dean walked into the room & called her name, nothing. By this time she was making a very slight swaying motion from side to side & I kind of panicked. Dean & I were both like, this isn't normal, something is wrong. Still no response. So I picked her up & her arms went rigid in front of her chest & then she slumped over as if she had passed out. I walked quickly to the bathroom, don't ask me why, & sat her on the counter. I started calling her name again & then BAM, it was as if nothing had happened. She said, "Mommy", and hugged me. She was a little grumpy & tired but when I tried to put her down for a nap she begged to stay up & watch a cartoon. 

My whole day has been filled with reading what I could find on the Internet, watching videos on YouTube about different kinds of seizures & I even had a lengthy discussion with a pediatrician from her Dr. office. So far it's kind of a game of sit & wait. I will be watching her and keeping a journal of any episodes she has in the future. I realized this wasn't her first seizure. She had a small one about two months back. I had put her down for a nap one morning & she stared off into nothing. I called her name a couple of times & even shook her shoulder a bit because her blank stare scared me. It was so short I didn't give it another thought. I just didn't realize it until now that she had had a small seizure. It was very mild compared to this one. This one lasted almost a minute.

I didn't write this post to garner sympathy. What I am hoping will come of it is information, comfort, & words of advice. I'm desperate to find out all there is to know about this condition. I know it's not super serious or life threatening but it feels a little overwhelming to me at the moment. Please feel free to email me if you don't feel comfortable posting about this in my comments. My email is toward the bottom of my blog.

Tomorrow I will finish up the last of the baking for our Thanksgiving feast. Despite these rough last few weeks I have so very much to be grateful for. Our family has truly been blessed over this last year. I hope you all have a wonderful Thanksgiving.

6 comments:

Mrs. Officer Andelin said...

My Briggs has passed out a lot since he was like 7 months old. THen his passing out turned more seizure like, and then his Dr. reffered me to a neurologist. Nothing came of it. He still does his seizure things once in a while. It's like they peaked, and then slowed down. Nothing came of it medically, but I do know that there is a lady in the ward that has gone through this with her daughter. I am sure she would have tons of information and referals if needed/wanted....let me know if you want me to tell her and she can get in touch with you. I hope everything is ok. It's scary though.

Jamee
xoxo

Vicky said...

You know we've played this game for 24 years with Audrey. Her seizures come from a different source. Childhood seizures can come and go with varying degrees for many different reasons, most unknown to man. She could outgrow it as many do or it could develop into the condition known as epilepsy. (Any members on either side of the family with epilepsy?) You are right, Summer. It's a 'wait and see' game. If her seizures become more frequent, she'll have to see a neuro and be medicated. My advice to you....ALWAYS watch her in the bath and around other sources of water and document each and every episode. Email me if you need any other info or if you have questions. If it's not one thing, it's another, right?! My best to you and yours.

Vicky said...

Meant to say, "Have a happy Thanksgiving"!!

Elissa said...

summer, i know nothing about this at all. but i am saying a prayer for you all right now for God's protection and for wisdom for you guys and whatever doctors you come in contact with.

hugs your way

An Art Nest said...

I know on the phone I was like "It's okay, it's okay" but when I hung up I thought, "what a stupid thing to say" - It's never okay when something like that happens to our sweet ones. I now realize I was comforting myself and not you. I love you and that sweet little Aris. I'm 'feeling the prayer' that in the midst of this busy season of the icks you & Dean will find clarity and peace. I'm thankful for your family that was able to come and be there with you guys :) Maybe God let it happen now when you would have some support surrounding you this week. Wish I could be there to hold someone or make a pie or even to clean your toilets. I love you!

Amy said...

Summer, I really don't know much about what may be happening but it sounds like what a childhood friend of mine had. It was called "absentee seizures" his were brought on by low blood sugar, if I remember right. I am sad this is happening, but grateful you are aware and can find out what is happening with her.